Makayle's Archive

May 23 Updates and Birthday Party May 23

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Some updates and happenings for ya all…

Peanut’s liver numbers are remaining slightly elevated and under normal conditions they’d be doing a liver biopsy to check things out. However, her platelets are remaining low so they don’t dare do the procedure because of the extra risk of bleeding complications. So we just continue to monitor her and increase her immune suppressant drug.

Still no answers as to what’s causing the reoccurring internal bleeding problems. We’re going to hope that (if it happens again) they’ll be able to do the red blood cell tag early enough to see where the bleeding’s coming from  and/or that there wont be an air pocket so that they’ll be able to do a colonoscopy and go in and check things out. So if/when it happens again we’re supposed to rush right in and get an x-ray and if there’s no pneumatosis then they’ll scope her. We’re also tentatively planning on an upper and lower scope in the next few months if she doesn’t have a bleeding episode before then.

They did a CT scan last Thursday to check her vessels and also to check for lymph nodes since her EBV is still showing its ugly head. They also put her back on acyclovir to see if they can get that back in check again. We have yet to hear about any results from the scan though. I’ll probably be calling to bug them if they don’t call tomorrow.

On top of all this, the doctor felt it necessary to inform me that its not uncommon for transplant kids with these problems to end up needing another transplant. If it did come to that she doesn’t feel like it’d be any time in the near future. But still, I so did not to hear this right now! I’ve been feeling the effects of all the worrying I’ve been doing as is!

On a happy note…

To celebrate our mom’s 2 year death anniversary on the 13th my sister’s judge signed the bifurcation (or whatever its called) and she’s officially a single woman!

Also, the weather decided to be kind to us and clear up for Peanut to have her birthday party outside on Saturday. Peanut had a blast and we’re so thankful for all her (and our) friends that helped make it special! You can check out pictures from the event here.

Then to finish out the crazy week, Luke and I ditched the kids and went to cheer on the BYU rugby team in the national championship game. Sad they lost (we blame it on the refs) but we enjoyed ourselves and they still played a great game! And my brother-in-law scored a try (or whatever it’s called) which was the best part! Photo’s from the Rugby game here.

Mar 29 Green Chili Chicken Enchilada’s Mar 29

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Dinner was so good that I have to share the recipe! (Plus it’s been awhile since I’ve done anything of the sort!)

1 1/2 lbs chicken – cooked and shredded

Combine:

1/2 c. honey

1/4 c. lime juice

1 T. Chili powder

1/2 t. garlic powder

Marinate chicken in above mixture for 1 hour.

When done, mix suace:

2 (10 oz) cans green chili enchilada sauce

1 c. half and half

Put about 3/4 c. of sauce in bottom of 9×13 pan.

Then I used the tortillas that you cook yourself (about 10) but you can use other kinds.

Put some chicken, spoonful of sauce, and some cheese in tortilla roll up and place side by side in pan.

Poor remainder of sauce over the top and sprinkle with cheese.

Cook uncovered at 350 for 25 minutes.

SOOO scrumptious!

Mar 05 Has it really been 3 years already!? Mar 05

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It’s amazing to think that 3 years ago today I was preparing for surgery to donate half my liver so my daughter could live. I drank the nasty drink only to receive the news an hour later that someone else was able to give her the gift of life through organ donation. Can’t even begin to describe my emotions and feelings at that time. It’s all just so amazing and I can’t express enough gratitude to my Heavenly Father for our amazing miracle.

This is her right before we took her down to surgery.

Probably feeling extremely awful but still had smiles!

This is her in the PICU after surgery

SO many tubes and wires and things in such a tiny girl!

Breaks my heart every time I look at these pictures.

This was the first time I got to hold her afterwards.

Very tender moment for me!

I’m so grateful that I was able to be there and wasn’t in a hospital bed myself!

And here she is now! Three years later and super crazy and energetic.

So grateful that TR has such an amazing older sister!

Can’t imagine life without her!

Feb 01 Oreos, Girl Time, and Updates Feb 01

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TR had her first taste of Oreos and loved them just as much as her mom! Yes it was a mess but too cute!

This is her trying to play peek-a-boo. She tries so hard but only covers maybe one eye 50% of the time! It’s quite cute. She is still our little tornado. Luke was taking care of her while I was in the hospital with Peanut and was filling me in on what he was doing at home. He explained it pretty well when he was complaining that while he was in the kitchen cleaning the fridge she was destroying the living room. Then while he was in the living room picking up her destruction she was in the kitchen pulling all the towels, spatulas, spoons, etc. out of the cupboards/drawers. And around and round it goes! That’s the story of our lives! But she’s just too cute and fun to complain about! :) Her smile and jibber jabber continues to melt my heart! She’s also started scaring me half to death by climbing on everything and anything she can get on/in. So nows she’s turning into our little monkey too! And I’m continuing to realize how low-key of a child Peanut was when it comes to all that!

Couple of weeks ago Peanut and I got to go spend a night and day with this super smiley, super cute, little girl. She just keeps getting bigger and cuter by the minute! It was a lot of fun to go hang out with my sistas! And very much needed I might add! Love them so much and am so grateful to have them in my life!

Had to do one more of her cause she’s just too cute not to share!

Update on the Pea… She hasn’t had any more super worrisome bloody poops! We’ve had two scares but they, thankfully, didn’t amount to anything. At her doctor appt 2 weeks ago the doctor said that if she were to have another air pocket then they’d have to keep her in the hospital NPO (nothing my mouth) for a week! So ever since then I’ve been praying extra extra hard that it wouldn’t come to that cause I’m just not sure I could handle it right now. I feel like I’m not as strong as I used to be when it comes to spending time with Peanut at the hospital. I still continue to try and live by our last blogs title ‘Count Your Many Blessings’ because sometimes that’s the only thing that keeps me going! And I cease to be amazed by how much our Heavenly Father has really blessed us with (and continues to do so!) and I’m so grateful for the gospel and it’s teachings that give my heart the peace and comfort it needs. I of course can only write this now that I’m past my ‘I just can’t do this anymore!’ phase! ;)

Jan 12 Leo Jan 12

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Luke’s been getting a little worried with all the princess stuff around our house lately. But to put his mind at ease I thought I’d post a picture of what she chose to dress up as today…


She wasn’t very happy to get her picture taken though.

Jan 11 Proof Jan 11

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That the fire engine does exist! Daddy was beginning to question it but turns out that a little boy that visits the hospital a lot keeps it hidden away in his room. Peanut happened to notice it in his room during one of our walks down the halls and had her nurse go steal it from him. She later felt bad and let them return it to him after she found a new car…


These are the things that make hospital life bearable!

Update on her status: We are back home with still no answers. They are going to run a blood test for possible food allergies that could be causing it but they don’t seem real hopeful that they will find anything. They have a few hypothesis as to what is causing it back they really don’t know for sure and really don’t know what to do about it. So we just wait and see if it happens again :(

Jan 02 Here’s Hoping for a Happy 2011! Jan 02

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Sure hope our introduction into 2011 is not a sign of how the rest of the year will be! While Luke’s been at the hospital with a sick Peanut I’ve been home with a sick Tornado. Poor little T.R. threw up right before I was about to bring her home from the ER friday night. She also started with a fever by the time we got home and it only got worse until the thermometer showed 102.2 and I called the doc. They tested her for the flu, ear infection, and UTI all of which came back negative. Doc thinks it’s just some other virus (maybe the same one that was causing Peanut’s fevers, runny nose, and cough and ended her in the hospital with the bleeding?) and she should be over it soon. Her temps have been a lot better today and she’s actually crying for (and keeping down) some milk! The hardest part has been that she wont let me leave her side and refuses to sleep anywhere but in my arms. She’s started with congestion and cough last night/today so here’s to another sleepless night! ;)

Dec 24 Santa Claus Dec 24

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So when we took Peanut to see Santa Claus she was all excited until it was our turn. Then she freaked out and refused to go talk to him.

Tonight while Luke was tucking her in bed and saying goodnight here was the conversation…

Peanut: I don’t want to see Santa tonight.
Luke: You won’t, he’ll come while you’re sleeping.
Peanut: So I don’t have to see Santa?
Luke: No, no you don’t.
Peanut: Okay

Dec 24 She’s One! Dec 24

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We decided to have a small celebration just us here at home then we’ll have a bigger celebration with everyone down south next week. I can’t get over how cute and fun this little tornado is! And since she’s not a baby anymore and we can’t refer to her as Baby A, her new name on here will be T.R. for Tornado Rex. This is her latest nickname because she’s seriously into everything! She makes messes and destroys things faster than you can say NO! I don’t remember Peanut ever being this bad and I have a feeling that things can only get worse from here! But we love her so we’ll take the tornados too!

A few things about her at One Year…

-She’s already a picky eater just like her mom and sister, however, she does like tomatoes which none of the rest of us like. And she LOVES fruit! I’m so glad too because Peanut hardly likes any fruit.

-She already has a huge bad habit which I think will be one of my resolutions in the new year to break…she has to go to bed with a bottle (I’m ashamed to admit that it has become her ‘comfort object.’) It’s a tuff one though cause I’m glad she’s not addicted to the binky like her sister was.

-Her favorite things to do include: banging on the window (blinds if she can reach them), removing all the books from the bookshelves, putting the bath toys (or whatever she has with her) in the toliet, clearing the cupboard of sippy cups (which have recently been moved to a higher location, emptying the dish towel and bib drawers, waking Peanut up if she’s awake and Pea isn’t, tearing pages out of books and magazines, playing with her sister (when she’ll let her) and last the best of all…giving loves!

-She’s the hardest little stinker to get to laugh! A few things that are usually no fails are tickling (grabbing) her sides when changing her diaper and playing peek-a-boo and hide and seek. She also has the cutest little evil laugh – it’s may absolute favorite!

-She loves bath time!

-She loves when Daddy comes home! She’ll run to meet him at the door and then follow him where ever he goes. Peanut’s latest thing to do when daddy gets home is to hide from him under the desk in our kitchen and now TR does it too.

Dec 19 Merry Christmas! Dec 19

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Oh our poor neglected blog!  Stay tuned for updates hopefully soon!