Some updates and happenings for ya all…
Peanut’s liver numbers are remaining slightly elevated and under normal conditions they’d be doing a liver biopsy to check things out. However, her platelets are remaining low so they don’t dare do the procedure because of the extra risk of bleeding complications. So we just continue to monitor her and increase her immune suppressant drug.
Still no answers as to what’s causing the reoccurring internal bleeding problems. We’re going to hope that (if it happens again) they’ll be able to do the red blood cell tag early enough to see where the bleeding’s coming from and/or that there wont be an air pocket so that they’ll be able to do a colonoscopy and go in and check things out. So if/when it happens again we’re supposed to rush right in and get an x-ray and if there’s no pneumatosis then they’ll scope her. We’re also tentatively planning on an upper and lower scope in the next few months if she doesn’t have a bleeding episode before then.
They did a CT scan last Thursday to check her vessels and also to check for lymph nodes since her EBV is still showing its ugly head. They also put her back on acyclovir to see if they can get that back in check again. We have yet to hear about any results from the scan though. I’ll probably be calling to bug them if they don’t call tomorrow.
On top of all this, the doctor felt it necessary to inform me that its not uncommon for transplant kids with these problems to end up needing another transplant. If it did come to that she doesn’t feel like it’d be any time in the near future. But still, I so did not to hear this right now! I’ve been feeling the effects of all the worrying I’ve been doing as is!
On a happy note…
To celebrate our mom’s 2 year death anniversary on the 13th my sister’s judge signed the bifurcation (or whatever its called) and she’s officially a single woman!
Also, the weather decided to be kind to us and clear up for Peanut to have her birthday party outside on Saturday. Peanut had a blast and we’re so thankful for all her (and our) friends that helped make it special! You can check out pictures from the event here.
Then to finish out the crazy week, Luke and I ditched the kids and went to cheer on the BYU rugby team in the national championship game. Sad they lost (we blame it on the refs) but we enjoyed ourselves and they still played a great game! And my brother-in-law scored a try (or whatever it’s called) which was the best part! Photo’s from the Rugby game here.
















