The life of two kids pretending to be grown ups

Traveling Day

Luke — Fri, 30 Mar 2012 17:11:11 +0000

Today is a traveling day for us. We are headed down to Panguitch for a nephews baptism. It will be fun. The girls have been really good on the road so far.

Kisses and Loves

Luke — Thu, 22 Mar 2012 15:18:33 +0000

Today I left for the bus as normal to get to work but once I got down the street and around the corner I heard this small voice screaming ‘Daddy!!’. I turned around to find Kaisa in her pajamas and pink slippers chasing me down the street. She was crying and said she didn’t get ‘kisses and loves’. She was right she didn’t. When I left I thought she was still asleep but I guess when I opened and closed the door she woke up and was quite concerned about catching me so she get get those kisses and loves. She got them and I walked her back to the corner where I say mom waiting in front of the house. Once I saw her I turned and ran up the street. I was going to miss the bus. Sure enough I did. I was pretty close but it went by just as I was getting to the top of the hill. A missed bus was fine payment to make sure I got ‘kisses and loves’. Love you Kaisa.

Kaisa and her first dance recital

Luke — Mon, 27 Feb 2012 02:11:19 +0000

So it was a big week for Kaisa. Her and I had a fun ice skating date and then on Friday she had a Make A Wish dance lesson and performance. A bunch of kids signed up. They were going to meet with some girls that are attending a performing arts school and learn a dance to perform later that evening in front of an audience. Kaisa, however was the only one to show up. The girls were so good with her. They designed a dance all around her and what she wanted to do. She wanted to be Arial and dance like her so they designed an under the sea dance just for Kaisa. She loved it. When they did it I couldn’t get the video camera to start. Once the entire program was over I grabbed one of the parents of the girls and asked if we could get them all together again so I could record it. They gladly said yes and I was able to record it. They even gave Kaisa the dress when it was all over. Kaisa was in her glory.

kaisa-dance

Basement Construction

Luke — Sat, 28 Jan 2012 20:54:35 +0000

We have begun framing the basement. Yay!!

My Jacket Changes Lives

Luke — Sun, 15 Jan 2012 15:33:04 +0000

Today my Grandpa Nintendo jacket changed someone’s life for the better. I got on the bus to go to work as usual. I went to my usual spot at the back. There was someone new in my spot. Before I could take a seat he asked me where I got my jacket. He wanted to go get one. When I told him it was my grandpas jacket and I sewed on the patch he was disappointed. I thought the conversation was over but it was just beginning. He went on to say that when he saw me in my jacket he thought how life is one big video game and that we are the characters in the game. As you gain more knowledge and experience in life you are leveling up your character. The jacket motivated him to finish some of his goals he’d been putting off so he wouldn’t get a game over in this video game of life.

Cinderella Earned Some Cash

Luke — Fri, 13 Jan 2012 00:23:36 +0000

Here is a picture of her with her very first purchase. She bought it with the money earned from cleaning the bathrooms. What did she get? Fruit snacks of course.

Kaisa as Cinderella

Luke — Thu, 12 Jan 2012 22:42:48 +0000

Kaisa really wanted to clean the bathrooms to get some money to take to the store. She did a good job. When I took this pic she said she was Cinderella and I was her dad. Would that make MaKayle the evil step mother?

Wake Up Call

Luke — Thu, 12 Jan 2012 18:50:45 +0000

This morning I woke up to a naked Addie at my bedside. She had removed her jammies and her diaper and was attempting to climb in bed with me. She did have a new diaper with her and the box of wipes. Maybe we should start potty training.

Sorry Blog

Luke — Mon, 08 Aug 2011 03:44:56 +0000

I just wanted to let everyone know that we changed our password on the private blog. We got some feed back that it was a hard password to remember. This will be the last time we change it (I think). If you’d like the new password email me or respond to this post. We also need to apologize to this blog. We haven’t really posted anything here. All the fun posts are on the private one. We have 73 posts to it since we started and more are on the way.

Coming Home

Luke — Sat, 09 Jul 2011 16:47:04 +0000

Peanut is on her way home right now. We are all very glad. The doctors are going to have a pow wow on Monday to talk about what the next steps will be.

Blood Pressure Leakage

Luke — Fri, 08 Jul 2011 16:44:50 +0000

They did a red blood cell tag and that didn’t show anything. This morning they did a scope down her throat and up her bum. They did find many places where blood was oozing out and into the stomach and into the intestine. There could be more leaking up where they connected the new liver. The plan as of now is to start her on some medicine for blood pressure with the hope that that will relieve some pressure in the veins and they won’t ooze. If that doesn’t work they would have to do surgery and put a shunt in to relieve the blood pressure.

She is on and off grumpy all day which is understandable since they stop her from eating all the time and have to keep poking her for blood samples. She does keep her fun quirks about her. She loves to hook and unhook all the cords to her when she goes potty. She makes things for Grandmas and cousins too.

I hope we can get some sort of fix with this blood pressure soon. It’s draining on both MaKayle and my nerves.

Hospital Update

Luke — Fri, 08 Jul 2011 05:24:33 +0000

Many of you might have heard already but most of you probably haven’t heard that Kaisa has been back in the hospital. MaKayle brought her in Thursday evening. It is for the same reason we have been here before. She keeps having those bloody stools. They have done the same tests as always and haven’t really seen anything. Tomorrow she will get scoped. She was still pooping blood this afternoon so we are hoping that tomorrow isn’t to late and they will still be able to see something. We will post more as we know more. As as always thanks for all your prayers.

The mini blog is up

Luke — Wed, 29 Jun 2011 14:53:10 +0000

The mini blog I mentioned in my last post it up and running. We have been posting to it for the last few days. Yesterday alone we had four small posts to it. We have had a lot of fun with these quick posts and I’m sure there will be many more posted to it in the near future. This blog will stay right where it is and we will continue to post here as well. Just not as often. The mini blog can be found here: family.lukeandmakayle.com – If you’d like the magic password let me know. Because it is password protected you won’t be able to put it in an RSS reader. Sorry. You’ll have to come back to the url to see what’s new.

A smaller blog

Luke — Mon, 27 Jun 2011 14:27:59 +0000

We admit that we haven’t been the best at posting to our beloved blog as of late. Mak and I were very excited to use our phones to take pics of what we are up to and post those pictures right to our blog. We thought it would get us going more on this blog. Turns out though that the WordPress app for mobile devices is pretty limited. What we wanted was a quick and easy way post something small. I’ve known that doing just that is what a Tumblr blog does. I looked into and and showed Mak what we would need to do to post to it and we both really like it. In short we will have it up sometime this week. This blog will still be around and we might even post more lengthy updates to it. The blog that gets posted to often with small posts will be the new one. It will be password protected as well so if you want to follow it respond to this post and I’ll put you on the list to get the magic password. We are not sure what url the new one will reside at. It could be this url or a new one. Just wanted to give you all a heads up if you come back here next week and this is gone. It won’t really be gone, just moved. k thx bye

A great weekend

Luke — Mon, 20 Jun 2011 13:02:46 +0000

We had really busy and exciting weekend. Grandma Roz showed up and the girls loved it. Saturday we took a trip to get some more trees for our yard and we got some good ones that were on sale and on clearance. Peanut loved digging holes to plant them.

On Sunday we went to see my grandpa and other family. I borrower a tennis racket from my uncle that I’m really excited to try.

The best part of the weekend was heading out to Walmart to pick our shiny new iPhones. I can’t tell you how cool these phones are. Mak was pretty amazed as well. Walmart is having a sale on the iPhones. They are being sold for fifty dollars off. If you can start or get on a family plan of four or five the plan is actually very affordable. Okay I’m going to go play more with this phone. I posted this post from my phone.

Updates and Birthday Party

MaKayle — Tue, 24 May 2011 00:26:53 +0000

Some updates and happenings for ya all…

Peanut’s liver numbers are remaining slightly elevated and under normal conditions they’d be doing a liver biopsy to check things out. However, her platelets are remaining low so they don’t dare do the procedure because of the extra risk of bleeding complications. So we just continue to monitor her and increase her immune suppressant drug.

Still no answers as to what’s causing the reoccurring internal bleeding problems. We’re going to hope that (if it happens again) they’ll be able to do the red blood cell tag early enough to see where the bleeding’s coming from and/or that there wont be an air pocket so that they’ll be able to do a colonoscopy and go in and check things out. So if/when it happens again we’re supposed to rush right in and get an x-ray and if there’s no pneumatosis then they’ll scope her. We’re also tentatively planning on an upper and lower scope in the next few months if she doesn’t have a bleeding episode before then.

They did a CT scan last Thursday to check her vessels and also to check for lymph nodes since her EBV is still showing its ugly head. They also put her back on acyclovir to see if they can get that back in check again. We have yet to hear about any results from the scan though. I’ll probably be calling to bug them if they don’t call tomorrow.

On top of all this, the doctor felt it necessary to inform me that its not uncommon for transplant kids with these problems to end up needing another transplant. If it did come to that she doesn’t feel like it’d be any time in the near future. But still, I so did not to hear this right now! I’ve been feeling the effects of all the worrying I’ve been doing as is!

On a happy note…

To celebrate our mom’s 2 year death anniversary on the 13th my sister’s judge signed the bifurcation (or whatever its called) and she’s officially a single woman!

Also, the weather decided to be kind to us and clear up for Peanut to have her birthday party outside on Saturday. Peanut had a blast and we’re so thankful for all her (and our) friends that helped make it special! You can check out pictures from the event here.

Then to finish out the crazy week, Luke and I ditched the kids and went to cheer on the BYU rugby team in the national championship game. Sad they lost (we blame it on the refs) but we enjoyed ourselves and they still played a great game! And my brother-in-law scored a try (or whatever it’s called) which was the best part! Photo’s from the Rugby game here.

Look Alikes

Luke — Fri, 20 May 2011 19:01:22 +0000

Sometimes we hear that our littlest tornado girl looks like dad. Other times she looks like mom. I personally have always thought she looks a lot like MaKayle. MaKayle had these two pictures up together and this solidified it for me. I threw them into Photoshop and did some quick work to make them easier to compare. Here they are at the same age. What do you think? Look alikes?

Peanut Update

Luke — Mon, 09 May 2011 22:31:45 +0000

Thanks for all of you that responded and offered to baby sit. It means a lot. We did end up coming home Friday evening. Peanut stopped bleeding and they decided to stop doing any more tests since everything was coming back with no results. They have a few more they want to run but in order to do so they need her to be bleeding and to not have that bubble in her intestinal wall. That means we are free to go home. We will run back in if she starts to bleed again though. I guess there is another little one with a very similar problem and after a long wait they are finally finding out where the bleeding is coming from. Guess we just have to keep at it. Thanks for all your support everyone.

Looking for a baby sitter

Luke — Thu, 05 May 2011 00:40:47 +0000

Yes I’m posting about Peanut in the hospital again. We had more bloody stool today. So we are back here at good ol Primaries. It is a great hospital so I guess if we have to be in the hospital a lot this is a good one to be in. They are testing for the internal bleeding in a few different ways. They all take time so we are in need of someone to watch our other little one while I get some hours in at work. If you are available and willing please let me know.

Hospital Update

Luke — Thu, 28 Apr 2011 22:50:17 +0000

Just wanted to let everyone know that Peanut made it home and she is doing fine. She stopped bleeding internally. The bad thing is we still don’t know what has been causing this internal bleeding. We will be setting up a time to go back and do some more tests soon. Probably in the next two weeks. The only major thing about leaving the hospital was that Peanut had a princess balloon and as they went outside it blew away. It was pretty dramatic that she lost it. Mommy told her it went to Heaven. She told me as soon as she saw me and the event even made it into her prayers that night. It went something like – “Thank you that my princess balloon made it to Heaven safely.”